In May of this year, Joy Woollerton, one of our Residential Property legal advisors, will be trekking the Inca Trail to Machu Picchu to raise funds for the Huntington’s Disease Association (HDA).
Huntington’s disease (HD) is genetically inherited and kills off cells in the brain. It currently affects at least 7,000 people in England and Wales and anyone who carries the mutant gene will develop HD. Their children have a 50% chance of inheriting it.
It is a devastating condition that affects muscle co-ordination, often causing involuntary movements, and it also leads to cognitive decline. There is no cure, although there are treatments that can help to improve the symptoms.
Very recently, the first drug has been developed, which could, potentially, correct the underlying defect but it is still at the clinical trial stage. Death may not occur until 15-20 years after the onset and sufferers typically start to be aware of the illness in their late 30s or early 40s.
The HDA offers affected families support and advice and also provides professionals with the education, support, incentive and motivation to provide services for sufferers and their families. The HDA is financed through the generosity of trusts, foundations, the statutory and corporate sectors, branches of HDA, members, friends, and people, like Joy, who know of families affected by this dreadful disease and want to help.